Sunday, September 12, 2010

BRAND NEW FIBRO FORUM!!

Howdy, friends and family!
I hope everyone is having a good Sunday.  I can actually say that today is one of my rare "good days." So I'm takin' it for everything it's got!!!!  I'm still having pain (I will ALWAYS have pain, I think) and at my doctor appointment, she raised my morphine long-acting to 100mg every 12 hours, which is finally now starting to kick in so I don't need as much as the break-through medicine, Lortab.  I know that in most people, those doses would choke a horse. But my pain in my lower back just eats it up the second it hits my system.  To look at me, you wouldn't see me slurring my words or acting goofy, and I'm definitely NOT "high", I take the meds purely for pain relief.  Yet I always am nervous to turn in my prescriptions because I think the pharmacist must think, "Geez, this lady is a junkie."  It's horrible to have to think like that, but that is how society is today.  Just a shame.  The people who really need the medication have to go through hell and high water, whereas the "junkies" have no problems at all.  I better not get started on this subject....I have too strong opinions about it!!!!

OK, here's the big news of the day:  I met a fabulous new friend named Sally on Facebook and she offered to help me with my support group - to give it a boost or a "face lift," shall we say.  She set up a beautiful forum for people with fibro and other invisible diseases to go to and write posts about anything: how you are feeling, medications, vent about something that is bothering you, ANYTHING!  And not only that, she included educational items like "what is fibromyalgia" and symptoms, medications, ect.  The color scheme is, of course, purple as that is fibro's "color."  We are still using that beautiful butterfly of Eileen McKarthy-Keddy (thanks again, Eileen!) as our forum's "logo." Both she and Sally did an absolutely fantastic job of helping me out with this huge project. I am so fortunate to have so many fantastic people in my life - both on AND off line.  I am so excited to see you guys over there. So if you are joined in at my support group, PLEASE go over to the forum and register.  The forum is CLOSED to the public, but anyone can join after being "screened" by the webmasters, which are Sally and myself.
You can get there by clicking on this post's title, our forum logo button on the top left side-bar (which will always remain there) or down below.

OK, folks, I hope this weekend was good for you and you are not in flare-up. I hate those!  And if you are, you are not alone.  Gentle hugs and prayers for all who read this blog. I love you all!  :0)  OK...you can go to the forum by clicking here:

TAKE ME TO THE NEWLY RENOVATED FIBROWHAT FORUM!!!!

God bless,
Until next post,
Missy

PS....I've added yet another brilliant blog to the awards page.  Check it out!

6 comments:

  1. thanks Missy for the kind words about my blog. I just went under the awards and saw mine. Also saw a few new ones I am going to check out tomorrow. I will check out the new forum tomorrow. It is getting near bedtime for us. I am so glad you had a good day. I, also, feel weird getting some of my meds, but hey, if they had the pain, they would understand us better, I think. Have a great day tomorrow too.

    ReplyDelete
  2. Thank you, Heather. I'm glad that someone else shares my "weirdness" about getting our pain meds. I'd hate to think I'm alone in this. And as for your blog, I look eagerly for each post you write. I wish you would put a picture of your mom up. Can you do that? I'd like to see what she looks like. Does she look like you? Or shall I say...do you look like her? I looked like my mom. In fact, people called us "twins." I miss her. She died of kidney failure in July, 2008. She was only 60. I like to think she is looking down on me from heaven. I hope she likes what she sees.
    Have a good day, my friend.
    Say hi to your mom for me!
    Hugs,
    Missy

    ReplyDelete
  3. I, for one, no longer care about what others think. Pharmacist, doctors, people. Until you walk in my shoes and see how my meds help me get up and do vs do nothing for the pain has hold of me, don't judge me. I've taken a good healthy dose of morphine and noraflex and the doctor couldn't believe how much my attitude changed and how much I was able to get done the next 24 hours in my own home. It's a blessing to be able to have your pain controlled. Good luck on your Fibro venture. The more we all talk, the more it will become familiar to others so we all can be understood. Hugs. Tammy

    ReplyDelete
  4. Thank you for leaving a comment, Tammy. I love it when people take the time to respond to one of my posts. I completely agree with your philosophy about pain. NOBODY can tell you if you are having pain, just like WE can't tell THEM they have pain. It is very objective and personal for everyone. People tolerate more meds than others, or their systems are more dependent than others. There's so many variables.....we shouldn't be judged!!

    God bless you, Tammy!
    Hugs,
    Missy

    ReplyDelete
  5. Just found you and can't wait to read through your blog!! Come see mine as well at rosemaryl.blogspot.com. It's called Seeking Equilibrium. I've had Fibromyalgia for over a year and have been journaling my experience as well.
    Love the Fibromywhat Forum on Facebook!

    ReplyDelete
  6. Thank you, Rosemary. I will definitely check your blog out. It sounds good! And thank you for your comments on the Fibro Forum. I appreciate it!

    Have a great day!
    Hugs,
    Missy

    ReplyDelete

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